Parkinson's &

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Who Are The Advocates?

They are YOU and ME if Sid Levin has anything to say about it!

My hat's off to ya Sid! Thank you for involving me!

Scroll down to: 4. Message from the Executive Director: Volunteers Raising Money for Parkinson’s to read a little more 'bout Sid

Topic 23: parkinson's & advocacy links
This site contains education and research URL's bookmarked by a Parkinson's patient. Nothing you read in these pages should be considered an endorsement or medical advice.

What is an Advocate? (Generic) Backgrounder

What is an Advocate? Alzheimers Backgrounder

What is an Advocate? PD Backgrounder - Scroll on down to "The Advocate's Corner"
The Advocate's Corner

The Advocates Corner - PD Backgrounder
Today I’m advocating you!

The Advocates Corner - PD Backgrounder
Consider the action I am suggesting today

The Advocates Corner - PD Backgrounder
Taking Action!

The Advocates Corner - PD Backgrounder
Your Fate is in the Hands of Congress

The Advocates Corner - PD Backgrounder

Parkinson's Action Network Publications & Materials
Get an Advocacy Handbook
This handbook outlines the role and opportunities for Parkinson's advocacy.

The Parkinson's Action Network

Joan Samuelson Honored For Medical and Health Research Advocacy

Michael J. Fox Foundation

How You Can Get Involved: Parkinson's Action Network

Look for my friends... Greg in CA, Meg in KS, Peg in TN, etc. (guess ya gotta be a good eg to be an advocate...)
Find PAN in Your State

How You Can Get Involved: There are several ways that you can get involved with The Parkinson Alliance to help us reach our goal to cure Parkinson's disease by 2005.

The Parkinson Alliance publishes a free bi-annual newsletter, The Catalyst, filled with articles, messages from the President and Executive Director, news of funding raises events, and other exciting happenings

The Coalition for the Advancement of Medical Research (CAMR) is comprised of nationally-recognized patient organizations, universities, scientific societies, foundations, and individuals with life- threatening illnesses and disorders, advocating for the advancement of breakthrough research and technologies in regenerative medicine - including stem cell research and somatic cell nuclear transfer - in order to cure disease and alleviate suffering.

Grassroots Advocacy Program - PAN's NEW program will empower and include more Parkinson's activists than ever before!

The PLWP Advocacy Team

The PLWP Advocacy Team Page

Parkinson’s Resources of Oregon - Advocacy

Texas Parkinsonian Advocate - Terry Bowers
If you live in Texas, e-mail Terry and offer your support cuz Texas is about to ban important research too!
Texas Parkinson's Action Network Grassroots

New Mexico Parkinsonian Advocate - Tom Berdine

South Florida, Boca Raton based, Take Charge! Cure Parkinson's, Inc.

Grassroots Connection
An Independent Site ~ LET YOUR VOICE BE HEARD!

Grassroots Connection - Additional Links (Great Resource)

NetAction is a national nonprofit organization dedicated to promoting use of the Internet for effective grassroots citizen action campaigns, and to educating the public, policy makers, and the media about technology policy issues.

Virtual Activist Training Guide

Using the Internet for Outreach and Organizing

Project Vote Smart - A Voter's Self Defense System

Locate your Federal or State Elected Representitives
See How They Vote! Write Them A Letter!

U.S. House of Representatives - Write Your Representative Service
This service will assist you by identifying your Congressperson in the U.S. House of Representatives and providing contact information.

The U.S. House of Representatives
Locate Representatives'
Web Sites Listed by State

Senators of the 108th Congress Sort by: Name State Party

Senators of the 108th Congress - E-Mail Address; Postal Address; Switchboard Phone No.
Locate Your Senator By State...
Alphabetical Senate Address List

Senate Organization

Compiling A Member Voting Record

Patient Advocacy Resources

Advocacy Tool Kit - Selected Web Resources
Scroll Down For Links To All The Resources

Parkinson Society Canada

The Citizen's Handbook - Table of Contents
As far as we know, this is the most complete grassroots organizing guide available on the Internet.

The Public Policy Forum

The Stem Cell Network (Canada)

The Stem Cell Network (Canada) - Bill C-6
In this sub-site we have gathered information that should help you in forming your opinion on the measures proposed by Bill C-6, An Act Respecting Assisted Human Reproduction.

The legislation was introduced in the House of Commons on May 9, 2002, and passed by a vote of 149-109 on October 28, 2003. The Bill was then referred to the Senate. Before Parliament prorogued in November 2003, the Bill had completed Second Reading in the Senate. It has now been referred to the Senate Standing Committee on Social Affairs, Science and Technology for review. The same Bill was reinstated in the House of Commons on February 10, 2004 and will be forwarded to the Senate for its consideration.


Legislative Summary

Full Text as amended by the Standing Committee


Résumés Législatifs

Réimprimé Tel Que Modifié Par Le Comité Permanent

Bill C-13 Does Not Allow Therapeutic Cloning

Bill C-6 An Act respecting assisted human reproduction and related research
Text here...

"It (the cloning of embryos solely for therapeutic purposes such as stem cell research) is not allowed in the U.S. and would be a criminal offence carrying a penalty of up to 14 years in jail under the pending federal law (Bill C-6) in Canada."

Progress of Legislation - 3rd Session, 37th Parliament
(Bill C-6 An Act respecting assisted human reproduction and related research)
Status of Bill C-6

37th Parliament: A to Z Index (The index arranges information provided on this site by subject for easy searching.)
A to Z Index

37th Parliament: Members of the House of Commons - Alphabetical Listing: (299)
MP's by Alphabet

Members of the House of Commons - Current List - By Name
MP's by Name

Members of Cabinet: The Ministry - Current List - Addresses
The Cabinet

Write To Your MP

Write to your Member of Parliament expressing your views on this crucial issue

Your MP’s postage-free address is:

First Name, Last Name, MP
Parliament of Canada
House of Commons
Ottawa, Ontario
K1A 0A6

Postage is free to mail a letter to your MP in Ottawa

Contact the Health Minister, the Honourable Pierre S. Pettigrew at:

The Hon. Pierre S. Pettigrew, P.C., M.P.
Minister of Health
Room 306, Justice Building
House of Commons
Ottawa, Ontario
K1A 0A6
Telephone: (613) 995-8872
Fax: (613) 995-9926

The Hon. Pierre S. Pettigrew, P.C., M.P.
Minister of Health
Health Canada
0916A Brooke Claxton Building, 16th Floor Tunney's Pasture
Ottawa, Ontario
K1A 0K9
Telephone: (613) 957-0200
Fax: (613) 952-1154

Contact the Chair of the Parliamentary Health Committee,
Bonnie Brown at:
House of Commons,
Ottawa, ON K1A 0A6
Phone: (613) 995-4014;
Fax: (613) 992-0520

Canada's Senate
The Upper House of the Canadian Parliament consisting ordinarily of 105 Senators appointed by the Governor General on the advice of the Prime Minister. The Senate possesses all of the powers of the House of Commons except that of initiating financial legislation.

Schedule of all Sente Committee Meetings

Contact Your Senator

Canadian Senate Alphabetical Listing
Senators by Alphabet

Senators Phone and Fax List

Write To Your Senator

Write to your Senator expressing your views on this crucial issue

Your Senator's postage-free address is:

Senator First Name, Last Name,
The Senate of Canada,
Ottawa, Ontario
K1A 0A4

Postage is free to mail a letter to your Senator in Ottawa

CIHR Releases Human Pluripotent Stem Cell Research Guidelines - OTTAWA (March 4, 2002) - Under the guidelines, the funding for the following types of research would be banned: research leading to human cloning, reproductive and therapeutic cloning; research involving the creation of embryos strictly for research purposes; and, research combining non-human stem cells with a human embryo or fetus and human stem cells with a non-human embryo or fetus.

CIHR Press Releases

The ALS Society of Canada, Muscular Dystrophy Association of Canada and Parkinson Society Canada press release outlining their position on pending stem cell legislation.

Parkinson Society Canada Applauds the Principled Approach to CIHR-Funded Stem Cell Research

TORONTO, March 4, 2002 /CNW/ - Parkinson Society Canada strongly supports the Canadian Institutes of Health Research (CIHR) guidelines for CIHR-funded human pluripotent stem cell research, announced today by CIHR. Parkinson Society Canada endorses and encourages research using embryonic and adult stem cells into the cause, treatment and prevention of Parkinson's disease and other neurodegenerative disorders. This support assumes that any research conducted with stem cells satisfies the strict ethical standards outlined in the CIHR guidelines.

The Canadian Cancer Society and the National Cancer Institute of Canada (NCIC) will fund embryonic stem cell research in accordance with the guidelines developed by the Canadian Institutes of Health Research.

The Canadian Cancer Society Advocacy Page

The Juvenile Diabetes Research Foundation
Position on Embryonic Stem Cell Research

I smell a cloned rat - 2003-01-04 - Ottawa should not let the Raelians scare it into an inappropriate cloning law, says health policy researcher TIMOTHY CAULFIELD

"Not all cloning is alike: MPs must not let outrageous claims of Raelians drive national policy development," by Timothy Caulfield et al., (The Hill Times, Feb. 24).
"Not all cloning is alike"

Senators and Members of the 37th. Parliament - The Parliamentary web site where you can search for the contact information for your Senators and MPs.

The Hill Times - Canada's Independent weekly newspaper on federal politics. News about Canada's Parliament, its politicians...

All Kinds of Useful Web Links (Canadian) Compiled By The Hill Times Staff
Useful Canadian Web Links

B.C. Coalition of People with Disabilities BCCPD - Education, Advocacy, and Special Projects... A province-wide, non-profit organization run by and for people with disabilities.

We welcome your comments and suggestions about this site.

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Last modified: September 14th., 2003
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