Parkinson's
& Care-Partners
& Support Groups



Topic 15: parkinson's & care-partner / support group links
This site contains education and research URL's bookmarked by a Parkinson's patient. Nothing you read in these pages should be considered an endorsement or medical advice.


November is National Family Caregivers Month!

CARE (Caregivers Are Really Essential) is a sublist of the main PARKINSN List. It is especially for caregivers (CGs) of Parkinsonians (PWPs). The need for such a list was evident from feelings expressed on the PARKINSN List that there are times when CGs need to be able to "let off steam" in a place where they will not upset their PWPs. Some of us have CareGiver support groups, where we can safely express feelings, get practical support, and share experiences but some do not. The CARE list , as a "virtual support group", serves this need, but DOES NOT shut off the participation of CGs on the main list.

CGs who want to join CARE, where there is much less traffic than on the main list, may do so On-line or as follows:

Send in body of post (not on subject line) to: listserv@listserv.muohio.edu this command: subscribe CARE your full name no signature, please.

You will be added to the list, and will receive further instructions.

If you have problems, for CARE ask Camilla Flintermann or Jeff Jones (co-owner) for assistance.

Caregivers Are Really Essential (CARE)
Join or Leave the CARE List On-line

Caregivers Are Really Essential (CARE)
Archives On-line

Frequently Asked Questions For Caregivers
http://www.michaeljfox.org/community/

Welcome to CARE - for CareGivers of people with Parkinson's
http://www.geocities.com/pdcaregiver/

The Caregiver's Handbook
Assisting Both the Caregiver and the Elderly Carereceiver
http://www.acsu.buffalo.edu/~drstall/...

The Parkinson's Training for Caregivers project is a free online course developed to train caregivers in caring for those with Parkinson's Disease in long-term care settings
Parkinson's Training for Caregivers

CareGiver's Pages
http://www.geocities.com/pdcaregiver/...

Because We Care: Caregiver's Resource and Support
http://www.aoa.dhhs.gov/wecare/default.htm

Memory Loss - A Caregivers Guide
Understanding and coping with problem behaviors related to memory loss
http://www.mayo.edu/fpd/pd-info/memcontents.htm

The Caregivers' Role
http://www.parkinsonsinfo.com/about_...

Caregiving also takes an emotional toll
Thinking of You!
http://www.alzheimersdisease.com/...

The Parkinson Patient at Home
http://www.cnsonline.org/www/archive/...

Parkinson's Disease Caregiver Information
http://www.parkinsonscare.com/

How to Care is here to help you manage the realities
of caring for others and yourself by supplying practical,
portable information on the issues we know you will confront.
http://www.howtocare.com/index.htm

National Family Caregivers Association (NFCA).
NFCA is a grass roots organization created to educate, support,
empower and speak up for the millions of Americans who care for
chronically ill, aged or disabled loved ones.
http://www.nfcacares.org/

SeniorCareWeb - Links & Resources
http://www2.seniorcareweb.com/senior/

Patient\Caregiver Resources
http://www.parkinson.org/services.htm

Caregiver Resource Guide - Canada
http://www.caregiver.on.ca/nwnwrg.html

Internet Health and Medical Resources
http://www.mayoclinic.org/healthinfo/resources.html

Canada's Caregivers - A Survey
http://www.hc-sc.gc.ca/seniors-aines/...

Help for Parkinson Patient Caregivers
http://www.seniorworld.com/articles/...

Patient Perspectives on Parkinson's
http://parkinson.org/pr1.htm

Support Group Leaders Manual
http://www.parkinson.org/supman.htm

Please check your area code on the following site and if you find their site is not up to date, please inform NPF

Locate Support Groups by Area Code
http://www.parkinson.org/acodemap.htm

(I've been informed that, if you click on 713 on the above site, you won't find up-to-date info on HAPS and that's not nice...)

Houston Area Parkinson Society does a great job and offers 32 weekly free support and therapy groups in 16 locations in the greater Houston area...9 counties. Check out their web site and then click on Therapy & Support
http://hapsonline.org

Support Groups & Patient-to-Patient Services
MGH Neurosurgical Service MGH Neurology Department
http://neurosurgery.mgh.harvard.edu/SptGps.htm

Virtual Parkinson's disease Care-Givers' Support Group On-Line
Care-givers Are Really Essential (CARE)
http://new.parkinsons.org.uk/care.htm

Monitor the Forums On-Line
Search their Archives! Read the latest news!
Whisk me to the VIP Page

Crosswinds Power Search
Hint: Do a search for CareGiver, you'll surely find some useful resources.

We welcome your comments or suggestions about this web site

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Last modified: August 10, 2003
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