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Parkinson's &
Publications
Topic 35: parkinson's & publication links
This site contains education and research URL's bookmarked by a Parkinson's patient. Nothing you read in these pages should be considered an endorsement or medical advice. When I was first diagnosed, I of course knew zip about Parkinson's and found only a few outdated references in my local library... Now there is a lot of information but for some inexplicable reason it seems buried and not readily accessible on the big Foundation's sometimes hard-to-navigate web sites... So this is my attempt to "organize" publications... WPDA Publications - Here is the first listing of publications on Parkinson's Disease available from various, mostly WPDA members, associations. WPDA invites all PD Associations, worldwide - even non-members - to make their educational booklets available for inclusion in this list. (English,Chinese, French, German, Italian,Portugese, Spanish, and Swedish, so far... it's a good start!) http://www.wpda.org/publications/ APDA Publications Order Form Send for your copy of these APDA publications http://www.apdaparkinson.org/publication_order.html The APDA has Educational Materials http://www.ctapda.com/educate.htm The National Parkinson Foundation, Orange County Chapter Offers Free Literature for Patients, Family, and Caregivers - New Booklets Provide Support and Insight for Those Living With Parkinson's Disease - The Booklets are in .PDF format and require the Free Adobe Acrobat Reader (see Acrobat link below) http://www.npfocc.org/npfocc_pr.html NPF has Free Publications - To request a list of our free publications please call or e-mail us with a mailing address and we will rush you an information package e-mail: mailbox@parkinson.org Telephone: (305) 547-6666 - Fax 305-243-4403 Toll Free Nat'l 1-800-327-4545 http://www.parkinson.org/literatu.htm NPF has Recommended Reading for Parkinson's http://www.parkinson.org/elsewher.htm NPF has back issues of Research Reports - Read them off the shelf OR Download them to read later http://www.parkinson.org/rrframes.htm NPF has On-line Publications - Read them off the shelf OR Download them to read later - Some Booklets are in .PDF format and require Adobe Acrobat Reader (see Acrobat link below) http://www.parkinson.org/onlinpub.htm APDA Downloadable Booklets Order Form All Booklets are in .PDF format and require Adobe Acrobat Reader (see Acrobat link below) http://www.apdaparkinson.org/booklet_order.html APDA Support Groups Video Library http://www.apdaparkinson.org/sgvideo.htm NPF Parkinson Multimedia Library http://www.npf.healthology.com/focus_index.asp?f=parkinsons_disease NPF has a DBS Video Tape http://www.parkinson.org/unlockingpd.htm NPF has additional Patient\Caregiver Resources http://www.parkinson.org/services.htm NHS (UK) has Resources for Parkinson's Disease http://www.nhsdirect.org.uk/innerpage2.asp?Code=FM&Topic=305 PSC (Canada) The following list of brochures are available for download in PDF format. In order to view these brochures, you will need to download Adobe Acrobat Reader (it's free!). These brochures are also available directly from Parkinson Society Canada. http://www.parkinson.ca/pd/brochures.html A Booklet on Parkinson's Syndrome... http://www.parkinson.org/booklet.pdf Parkinson Post (Canada) - The Summer 2002 issue is now available! http://www.parkinson.ca/society/parkpost/post.html The Michael J. Fox Foundation lists community resources - The following books may be of interest to people with Parkinson's, their families, and caregivers http://www.michaeljfox.org/community/resources.html The Parkinson Alliance publishes a free bi-annual newsletter, The Catalyst, filled with articles, messages from the President and Executive Director, news of funding raises events, and other exciting happenings http://www.parkinsonalliance.net/news/catalyst.html The APDA has a Quarterly Newsletter... - Please complete the form to get on their Newsletter mailing list. http://www.apdaparkinson.com/newsorder.html NPF Orange County Chapter has a newsletter available online in pdf format http://www.npfocc.org/img_pdf/npf_july02.pdf Read Michael J. Fox's Newsletter "Accelerating the Cure" http://michaeljfox.org/images/spr_02_nwsltr.pdf Adobe® Acrobat® Reader® is free software that lets you view and print Adobe Portable Document Format (PDF) files. With Acrobat Reader, you can also fill in and submit Adobe PDF forms online. http://www.adobe.com/... Got a Child? or Grandchild? Try Neuroscience for Kids - Free Stuff http://www.soton.ac.uk/~jrc3/chudler/free.html |